MAIN GOALS OF A.I.P.A.F.:

• support patients and relatives in dealing with Fabry disease by providing general information on the disease, diagnoses, therapeutic strategies;
• support patients and relatives in dealing with Fabry disease by providing general information on the disease, diagnoses, therapeutic strategies;
• organize meetings between doctors and patients to discuss clinical, pathological, diagnostic, legal aspects and any other issue regarding Fabry disease;
• identify structures and institutions which help find solutions to improve the quality of life of patients and their families in terms of healthcare and social life.

ACTIVITIES OFFERED BY A.I.P.A.F.:

Welcome activities

• listening to patients, telephone counselling and visiting patients and their families
• domestic and humanitarian assistance
• web counselling
• first psychological meetings

Study groups

• individual and group psychotherapeutic and psychological-physical courses
• self-help groups for chronic patients
• self-help groups for relatives

Training, research and prevention

• research and prevention in institutions
• training and update courses for operators who work with the "chronically ill"
• public diffusion of material on prevention and the building of a culture of coexistence and dialogue with chronically ill patients

All group and individual activities on self-help, training and awareness development are carried out by psychotherapists.

A.I.P.A.F. has obtained the patronage of the Town Council of San Piero in Bagno (Forlì/Cesena) for all the activities and programmes to be spread and it will promote communication campaigns using town council billposting areas and distributing leaflets to promote the groups activities on self-help and awareness development.