www.fabrycommunity.com - web site providing information on the causes, diagnosis and treatment of Fabry disease. It offers support to families and patients.
www.fabry.org - web site on Fabry disease.
www.genzyme.com -
pharmaceutical company that owns and produces drugs used to cure some rare
disorders.
www.burlo.trieste.it -
new web site of the Hospital "Burlo Garofolo", the oldest children's
hospital in Italy which has been awarded the title of public law healthcare and
research institute; it is a point of reference for Italian pediatricians and
obstetricians. The web site can be easily used by all Internet surfers, users
and professionals, it provides information and training.
www.geneticalliance.org - portal on genetic diseases.
www.tkt5s.com - European pharmaceutical company specialised in the development of drugs for rare genetic disorders.
http://www.eudra.org/humandocs/Humans/EPAR/fabrazyme/fabrazyme.htm - information on the drug Fabrazyme
http://www.eudra.org/humandocs/Humans/EPAR/replagal/replagal.htm - information on the drug Replagal
www.orphanet.org
- Free-access
website providing information on orphan drugs and rare diseases
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